Banca de DEFESA: KATARINA WANDA FILGUEIRA SUJONO

Uma banca de DEFESA de MESTRADO foi cadastrada pelo programa.
STUDENT : KATARINA WANDA FILGUEIRA SUJONO
DATE: 23/10/2025
TIME: 10:00
LOCAL: Instituto de Letras
TITLE:

Inter- and intralinguistic translation of “Ehlers-Danlos, la maladie oubliée par la médecine”: raising awareness of a neglected genetic disorder

KEY WORDS:

Translation Studies; Medical Translation; Ehlers-Danlos Syndrome; Technical-Scientific Translation; Health Literacy.

PAGES: 225
BIG AREA: Lingüística, Letras e Artes
AREA: Letras
SUMMARY:

This study proposes an analysis of inter- and intralinguistic translation processes applied to a medical work, with the aim of facilitating the understanding of the message by the public affected by Ehlers-Danlos Syndrome (EDS). In recent years, there has been a significant increase in the number of EDS diagnoses in Brazil, a phenomenon that can be seen both in the expansion of clinics specializing in the treatment of hypermobility and in the organization of educational events aimed at disseminating information about the disease and its consequences. Despite these advances, it appears that much of the communication directed at patients still uses excessively technical language, making it difficult for lay individuals to fully understand. Given this gap, the present work proposes a linguistic adaptation that aims to democratize medical knowledge. To this end, excerpts from the French-language work Ehlers-Danlos, La maladie oubliée par la médecine, by Dr. Claude Hamonet, were selected and analyzed, which were then subjected to inter- and intralinguistic translation processes, resulting in the planning for future production of an informational booklet in Brazilian Portuguese. Considering the invisible but highly incapacitating nature of EDS, it is essential that patients have access to informational materials in their native language, written in accessible language. This measure not only facilitates understanding of the clinical manifestations of the disease but also contributes to the validation of their complaints before the specialized medical community.

COMMITTEE MEMBERS:
Externa à Instituição - NEUSELI MARINO LAMARI - FAMERP
Presidente - 2167913 - ALESSANDRA RAMOS DE OLIVEIRA HARDEN
Interno - 1314281 - ECLAIR ANTONIO ALMEIDA FILHO
Interno - 2695459 - JEAN CLAUDE LUCIEN MIROIR